The Unknown

I have written on this blog before about the genetic testing my neurologist recommended. I waited six months or so for the test to come back and at least another month while the results sat on his desk. Well, I finally got my point across to him that I wanted to know what the test […]

Rare Disease Day

February 29. The rarest of all days. It doesn’t matter if it’s leap year or not, the last day of February is always the rarest of all days in the year – the only 28th day of a month that ends a month. Because this is the rarest of all days, this is Rare Disease […]

Email Forgiveness

I’ve written about my distrust of doctors. I’ve written about what I believe to be needless suffering at the hands of physicians. I’ve written about the trials of traveling a little more than three hours to a medical center to see a neurologist listed as an expert in movement disorders (said specialist has moved to […]

Annus Horribilis

On November 24, 1992, Her Majesty Queen Elizabeth II attended a banquet at Guildhall to mark the 40th anniversary of her accession. The Queen gave a speech and she famously said, “1992 is not a year on which I shall look back with undiluted pleasure. In the words of one of my more sympathetic correspondents, […]